Diffuse Intrinsic Pontine Gliomas (DIPGs) are tumours located in the pons (middle) of the brainstem. They mostly occur in children.They are highly aggressive and spread very quickly with devastating results.
There are only 3-4 new cases of DIPG in Ireland each year.
The cause of DIPG is unknown and due to its rarity, research has been very limited.
The recommended treatment has been the same for decades.
There is no known cure.
Due to the location of the tumour and the fact it grows amidst the nerves, it is inoperable.
There is a less than 1% chance of survival.
90% of children diagnosed will die within 18 months.
If you know someone affected by DIPG, please get in touch, share your stories / findings and help us find a cure.