Here are some DIPG related websites and blogs we have found useful:

Our Butterfly Boy (Oisin’s Story)

DIPG Registry

Brain Tumour Ireland

Abbie’s Army

The Irish Cancer Society

The Lyla Nsouli Founsation

The Brain Tumour Charity

The Cure Starts Now

Defeat DIPG

Get Well Gabby

Cory’s Crusaders


We have received such wonderful support, treatment, and care from the doctors, nurses, social workers, and staff at the following hospitals and hospice. Please consider donating to help support their amazing work.

Children’s University Hospital, Temple Street

Donations: Temple Street Foundation


Our Lady’s Children’s Hospital, Crumlin

Donations: The National Children’s Research Centre


Saint Luke’s

Donations: Friends of St. Luke’s


St. Francis Hospice, Raheny

Donations: SFH


Other Useful Links:


Laura Lynn


Enable Ireland


We will be updating this page as our own DIPG journey progresses. If you find any useful links / resources that you think we should add, please get in touch!